Planning for Patients

What could make a teenage girl donate her baby-sitting money to a conference on a congenital developmental disorder instead of spending it at her local mall? Or pull a busy investment banker from New York City to Saint Paul, Minn., to take his first weekend off in six months to volunteer 16-hour days at the 2001 World Conference on Prader-Willi Syndrome's youth program?

The answer: knowing people like 32-year-old Larry Gardner, who has Prader-Willi Syndrome, a congenital disorder whos

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